I have found many a night or heck let's be honest early morning, afternoon and or/evening, most of some days, etc where I feel completely alone and like there is no one who understands what I am going through or can relate to my health concerns. You, WE are not alone. There are so many websites out there with support groups, blogs, journals and forums for people going through the same thing as us. Here are a few:
The above site was originally a blog started by a woman in the UK who has undergone Scoliosis surgery for a severe curvature and created this wonderful site with information, support links, blogs, items/suggestions for pain relief/management, as well as member stories and profiles linking thousands of Scoliosis and back pain patients all around the world!
If you ever think you are the only one with Scoliosis and feel like a monster because your clothes don't fit properly or you notice your physical differences in the mirror each morning, check out the above site. There are so many celebrities and athletes, including Olympians, who have Scoliosis as well. Vanessa Williams and Rebecca Romijn both have Scoliosis. They are generally considered two of the most beautiful people in the public eye and no one would ever guess they live with Scoliosis every day. Rebecca Romijn was actually my idol and muse when beginning Pilates for Scoliosis. She is a large supporter of both.
This website is amazing it links a wide variety of people from all over the world with many different ailments, diseases, and medical issues. They are SO supportive and people will start reaching out to you almost instantly after you create a profile.
The above site highlights different blogs specifically about Scoliosis from people all over the world.
The above site is another forum that you have to join to add comments to and join discussions. There are an endless number of Scoliosis conversations, threads, and topics being discussed. Almost anything you think you could deal with can be found on this website. If you have Scoliosis, I strongly suggest joining.
Again, networking is key. It helps keep your spirits up and remind you that other people have, are, and will continue to face the same problems. Reach out, ask questions, give feedback and you will be amazed at how much it can help you face your Scoliosis or medical issues.
Hopefully you can find some support, encouragement, and enlightenment if you are searching for it. I know when I am it is always helpful to me.
Always With Karma,
Amanda
The above site was originally a blog started by a woman in the UK who has undergone Scoliosis surgery for a severe curvature and created this wonderful site with information, support links, blogs, items/suggestions for pain relief/management, as well as member stories and profiles linking thousands of Scoliosis and back pain patients all around the world!
If you ever think you are the only one with Scoliosis and feel like a monster because your clothes don't fit properly or you notice your physical differences in the mirror each morning, check out the above site. There are so many celebrities and athletes, including Olympians, who have Scoliosis as well. Vanessa Williams and Rebecca Romijn both have Scoliosis. They are generally considered two of the most beautiful people in the public eye and no one would ever guess they live with Scoliosis every day. Rebecca Romijn was actually my idol and muse when beginning Pilates for Scoliosis. She is a large supporter of both.
This website is amazing it links a wide variety of people from all over the world with many different ailments, diseases, and medical issues. They are SO supportive and people will start reaching out to you almost instantly after you create a profile.
The above site highlights different blogs specifically about Scoliosis from people all over the world.
The above site is another forum that you have to join to add comments to and join discussions. There are an endless number of Scoliosis conversations, threads, and topics being discussed. Almost anything you think you could deal with can be found on this website. If you have Scoliosis, I strongly suggest joining.
Again, networking is key. It helps keep your spirits up and remind you that other people have, are, and will continue to face the same problems. Reach out, ask questions, give feedback and you will be amazed at how much it can help you face your Scoliosis or medical issues.
Hopefully you can find some support, encouragement, and enlightenment if you are searching for it. I know when I am it is always helpful to me.
Always With Karma,
Amanda
